New Scientific Possibilities for Help, But Not Hope

Sometimes I question whether I just wasn’t made for this world. That perhaps I was born defective and unable to survive. Many people are born with parts of their body that didn’t fully form or formed differently; some without the necessary components to function or function fully. And lots of people, who may have these differences, adapt and manage, and do not let their difference stop them from enjoying all life has to offer.

But my “defect” is in my brain, and I can’t seem to find a way to adapt or manage on my own. Often times, there are devices and tools to support and help in this process. I have tried the “devices” for my impairment: medications, ECT, exercise, diet, sleep, and a variety of therapies, to try to work with what I have been given. But for some reason, my brain remains resistant to change, unable to manage and function at a level that is personally acceptable.

It’s been exhausting – the entire process. And since I was in my late teens/early 20’s, I never thought I could make it to 35. I assumed my body would simply get too tired of the pain and stop working, or I would have to help do it myself. But even with these dark thoughts, every so often, there were flashes of hope; moments of a belief that things could get better. And so here I am – three weeks into 35, with a new possibility for change at my chemically-enhanced door.

I have had a good year and a half where I seemed to have found a concoction that made me feel more stable. Not perfect – I still dealt with mood swings, depressive dilemmas, and uncomfortable side effects – but enough to make me hopeful that I could work to form a functional and fulfilling life. Then we changed a medication, and the past three months have been a clusterfuck of mood swings, depression, and a melange of side effects. We hit a road block in terms of options and so a few weeks ago, my doctor conferred with her colleagues to see what ideas they may have for bipolar II medication-resistant treatment.

When I saw her last week she told me about two new scientific advancements that could drastically help me get better. (Please forgive my explanations, as I am still learning.)

The first suggestion is a test for genetic markers that show what medications work best in an individual’s brain. There are five markers and they are able to indicate drugs that will work; some that might work; and others that won’t. I found a website of a company that does it called Genesight. I don’t know if this is the company my doctor is referring to – but the hope is that with this test, we will stop having to do so much guesswork with my meds, and may find out if some are actually decreasing the positive effect of other drugs in my system.

The other suggestion is the use of folate. We all know about folic acid. (Okay I didn’t, but everyone else seems to refer to it like I should.) Doctors encourage women who are pregnant to use it to help with a fetus’ growth and have noted that it could help with growth and rehabilitation of other cells. If I were to just ingest folic acid, it would go through my blood stream and I would pee it out. However, this new folate supplement called Deplin specifically goes into the brain blood stream. Evidently, by delivering the folate directly to the brain, it helps with your body’s ability to absorb medications. So for me, while I have slightly benefited, my medication is still not being fully absorbed, and therefore, I’m not actually getting the full impact of the medications.

After explaining these ideas to me, my psychiatrist asked me if I felt hopeful.

The genetic markers sound interesting, though I feel like it isn’t going to be that helpful. I suppose it would provide me with the peace of understanding that there are genetic reasons why I am resistant to so many medications. And perhaps provide new ideas for medication usage. The Deplin definitely sounds too easy. The idea that a supplement is going to help engage my medications and that would help me feel better – I suppose it just sounds too good to be true. Then again, I know people who take incredibly small amounts of anti-depressants, and it changes their life. I find myself skeptical, but willing to give it a try. However, I would not say I am hopeful.

Hope is a complicated emotion for me. I don’t always have control over my hope – sometimes I can feel it behind my cynicism, trying to push through, small bursts getting by, evoking images of peace and contentment. But through the years, it has become an enemy of my depression – spreading fallacies of possible happiness into my brain, only to be devastatingly wrong.

I remember when I started to feel better after a few weeks of ECT. I was ecstatic because I had finally found something that would allow me the chance to have a life worth living. The short term memory loss was a bit annoying, but at the time, it was a small price to pay to have the heavy pressure of depression lifted. I’d found the “piece” that I was born without, that would make me whole – the component that would provide an adaptation to survive. And then it stopped working. And then I found out it wouldn’t work anymore, no matter how many times I tried. And then I was expected to go back to the medication drawing board and start again.

I would say that’s when my trust of hope died. That’s when I started to wonder if I was just too broken, the deficit irreparable and too impairing for me to ever be able to have dreams again. Hope had hurt me one too many times. So am I hopeful? All I can give right now is that I’m not NOT hopeful. I’m open to being pleasantly surprised, but I’m not running around telling the world to watch out because I’ll be out there soon! I have a feeling even if the Deplin works, I will still need to make changes to my meds, there will still be quite a bit of side effects, as well as possible withdrawal and mood swings. I am not naive enough to think that this is “my piece” anymore. But if my doctor is telling me that my what I was feeling this past year was only a fraction of the medication working and that I could feel better than that, I’ll swallow the pill faithfully, I’ll change the dosages, I’ll try medications again, I’ll do whatever it takes. At this point, what do I have to lose?

While some people believe that hope takes less energy than despair, I think there is a key component to that theory that often gets overlooked. Because when you are in the despair, you have to work to get to that hope, and you have so many factors against you. To reach a place of hope you must push through the exhaustion, find a way to ignore all past failures, and find the strength to block out the despair that radiates throughout your body and mind, draining you, beating you down, offering the temptation of rest.

I imagine myself on the side of a sea cliff, trying to pull myself up to get to safety, knowing that if my muscles get too tired; if I miscalculate one move; or a piece of the cliff simply loosens and drops, I could fall quickly into the dark, depressive water below, possibly being killed on impact. I wait, terrified, for a surge of strength or an outreached hand.

I want to have hope that I can feel better and find a new normal that doesn’t include dire mood swings and hypomanic bursts. I want to believe that help is on its’ way. But hoping for help doesn’t save me. And frankly, I’m getting really tired of holding on to this “sea cliff,” waiting for the moment when I can stand on firm ground.

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the pointless nature of “crying for help”

disclaimer: some stuff about suicide, self-harm, and just basically scary, downer stuff. don’t read this if it’s going to trigger you. i assure you it’s not worth it: just some ramblings but without a filter.

They say that an attempted suicide is a cry for help. While I have never attempted, I will say that based on my experience leading up to a moment like that, you are definitely past a “shout out.” Asking for help can be difficult for anyone. Some people don’t like to ask for help doing a difficult DIY project. A lot of people think they should be able to deal with something on their own, or maybe they don’t want to bother someone.

But I’m trying to understand this idea of crying out for help when it comes to depression. I never have really understood it, even when I have tried to do it. So let’s see, sometimes when I’m getting down, when I feel myself getting closer to a destructive ledge, I may call someone. When they ask “Hey, how are you?” I don’t say anything like: “You know how it is…I guess I just feel like i’m getting closer to a destructive ledge.” I don’t think that’s actually what they’re expecting and frankly I don’t think it’s what they want to hear. I usually just ask them about how their life is. I’m trying to get better at not hiding everything, so I might even say, “Hey, I’m just feeling out of sorts and just wanted to hear your voice and focus on you, because i love you, and i need to get out of my selfishly depressed brain right now.” But people are busy. And you’re calling “just” to talk? That doesn’t really take precedence over preparing for a party, or going out to dinner with someone. it doesn’t take precedence over a crying baby, or a timer for the oven.

So then you get to that destructive ledge. I suppose you can call out before doing something. Sometimes i have called someone before I harm myself. It’s hard – trying to express you’re scared without freaking everyone out. Because they don’t know where you are: maybe you have the knife to your wrist; or maybe you just are in bed and don’t want to get out. And besides, by that point, I have either decided to do something or not. In fact, the only thing that might stop me is if someone called me right in that moment. But that’s not going to happen.

Then there’s the “I’ve already done it and I’m ashamed” call for help. I’ve done that one a few times. Not sure it helps. I mean, it pulls me out of the chaos usually. Makes me remember that I don’t want to hurt others or to scare them with my unacceptable behaviors. Situations, that if and when things settle, I will have to explain, will never really be understood by loved ones because it won’t sound like a “good enough” reason to have done something they think is so unnecessary.

Recently, I was sitting and i could feel the wave coming. And i could feel that I wasn’t strong enough to push it down. I couldn’t help myself. And that “couldn’t” was turning into a “I don’t wanna” really fast. So I think: maybe I text someone? Maybe something vague with this hope that somehow they see through it and understand I need them to come save me? Because honestly, how the fuck is a text convo with emojis really going to help? And haven’t we had this conversation before, the last time I was in this position?

Then, what if it does pass? What if it wasn’t as bad as I thought it would be? Now I’ve scared them and they need me to call them all the time; they don’t want me to be alone. Now those things that took precedent before don’t, but you know it’s because of you, and the guilt is worse than if you had just gone through with it. By the time they call you back or get to your house, the immediacy has passed.

The thing about a call for help, is you have to want to make it. You have to have the strength and gumption to say that you need help. But maybe you don’t want to use up your “helps.” I mean, everyone says they will always be there, but lest you be the “boy that cried wolf.” Plus, you are bothering that person, you are impacting their life in a selfish way, so you kind of want to use those moments when they really matter. But then of course, how do you know if this time will matter, and what if you realize it but you’re too far committed to turn back and make that call?

I don’t know about this cry for help. During a time when I feel pointless, frustrated, exhausted, tired of trying, I am supposed to call someone and tell them that I am feeling those things and that I need them to help me. I mean, isn’t that contradictory?

And now it’s time for me to go off topic, because it makes sense in my head.

I was writing to a friend today and wrote this huge explanation of the past three months: what has happened, how i have felt, all the shit. And then I erased it. I didn’t want to freak him out. And I realized, I only share, I only ask for help, after I don’t need it anymore. So i will tell someone that the night before, I had wanted to die. I will email with a friend across the pond to tell them about a scary period of time I had the past month when I didn’t know whether I was going to be ok or not.

Because if provided through this viewpoint, it’s something they can handle. They need to know it’s ok so they don’t feel helpless. And I don’t want to burden them with something they can’t control – so i tell them after, as if it was just a momentary weakness. And you have to, because if you don’t, then they don’t trust you. When you say you’re ok in the future, they don’t believe you. They call you all the time or attempt to subtly make sure you’re alive by “just passing by” or “thinking of you and deciding to call.” And it’s funny, because even though at one point I thought that was what I needed; by that point, it just feels like they are reaching out for themselves. So they feel better knowing they were doing “their part.” In fact, I’m not sure they actually want to understand what I would need in terms of help.

Many people offer their help to me and in doing so, I see the love they want to provide. They are good people; caring people. People I am lucky to have in my life. But they don’t get it. I don’t know if they can’t because they don’t know what it feels like, or maybe because they aren’t really listening to me the way I need to be listened to. Or maybe I’m not being clear because I don’t know what I need, let alone what I need specifically from them.

To me a cry for help needs to be answered immediately and never is. To me a cry of help is yet another pathetic demonstration of why no one should answer. Honestly, i’m pretty sure just a good cry would be more helpful than anything else.

I’m Tired.

I’m tired today.

  • I’m tired of trying so hard to keep it together every day.
  • I’m tired of following a sleep regimen and still waking up fatigued.
  • I’m tired of trying to do everything “right” – going to the gym, losing weight, calling friends, not drinking, being vegan and not eating anything processed, and still not feeling good or having extra energ.
  • I’m tired of not being able to have more than a day or two of stability and balance.
  • I’m tired of having to make decisions.
  • I’m tired of not having a purpose that isn’t about myself. While I don’t miss working crazy long hours, I miss having a job where I am spending time thinking about others and doing work for them.
  • I’m so tired of seeing all of the hate and ignorance in the world today. Of watching history repeat itself.  Of knowing it will never stop and will only get worse. And not knowing what to do. Because $15 isn’t enough. Volunteering isn’t enough. There isn’t a job that will be enough. And people don’t really want to listen, to learn, to compromise, to change. I don’t want to stand aside – but I feel so useless.
  • I’m tired of not liking myself.
  • I’m tired of trying to understand why I do not like myself.
  • I’m tired of being told to have hope, to think positive, to just keep trying.
  • I’m tired of not being able to help the people I love. To watch them in stress, in pain, in sadness. Shitty stuff happens, but I wish I could just alleviate some of it.
  • I’m tired of the constant shame I feel about who I am.
  • I’m tired of the guilt I allow myself to carry.
  • I’m tired of not knowing what to do next.
  • I’m tired of not knowing the “right” thing for “me.”
  • I’m tired of caring so much, about everything. Of feeling so much.
  • I’m tired of trying so hard to just keep it together for everyone: my family, my friends, my therapist and psychiatrist. I’m just tired of feeling responsible for adding stress or pain to their lives because of my stress and pain. Of trying to make them happy or relieved.
  • I’m tired of all the dichotomies in my life. Of wanting to be alone but feeling so alone. For wanting to be happy but feeling like it’s a charade anyway. For wanting love but not the strings that come with it.
  • I’m tired of being so scared to do things. I don’t know when I became this way but I’m so fucking tired of it.
  • I’m tired of feeling like I have lost so much time in my life, so many chances, so many opportunities, and still wanting sometimes to just end it all because I’m just too tired to try to catch up.
  • I’m tired of my fucking side effects.
  • I’m tired of trying to imagine what it feels like to wake up without a mental illness. To have shitty days and stress and life, but not have to take drugs that make me feel like shit to just survive them, while others take none and are able to function just fine. To go to bed without fear that tomorrow I might not be able to get out of bed. Or wake up without knowing if I will be able to make it through the day.
  • I’m tired of feeling so guilty that I want more. That this is unfair. That I don’t deserve this. And then feeling guilty for thinking that. It just cycles over and over again.
  • I’m tired of having to change. To constantly fight myself, to unburden others, to hold back my anger, my frustration, my words to not hurt others. To get up every day and try to want things, work for things, be effective, have goals, work to get better at who I am. To push down the bad thoughts, the urges, the desires, to assuage others.
  • I’m tired of never knowing who to blame: is it the meds? the disease? my circumstances? me?
  • I’m tired of only seeing the mistakes I make. The failures. The not good-enoughs.
  • I’m tired of having hope. It’s almost more exhausting than just admitting defeat.
  • I’m tired of thinking.

I’m just tired.

Life Lessons I Have Found Through Spinning

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I couldn’t find a realistic picture of someone spinning, so I had to just go with the bike by itself. FYI: if you’re smiling while spinning, you are doing something wrong.

I fell in love with spinning about two years ago. I’m not talking about Soul Cycle where you are in lines next to people like factory-farmed pigs, and the person leading the class has maybe 1% body fat. I’m talking YMCA spin classes with people over 60. I’m talking, waiting until a room is open, and spinning alone.

Spinning, for me, is about being healthy, getting rid of anxious energy, and letting out endorphins. And perhaps more importantly, it is about deciding what challenge I want and choose to achieve that day. I realized recently that spinning actually serves as a fantastic analogy to the work I am doing in my life outside the gym. I never thought sitting on a stationary bike could provide life lessons, but it really does.

Here are some examples:

~ Life is a personal challenge. It’s not about what the people around you are achieving or what their goals are. You set your own expectations.

~ You are allowed to change your “goal” as many times as you want, whenever you want. Some days, you are not going to be able to do as much as you thought you could. And that’s okay. That’s what tomorrow, next week, or next month is for. You decide what you can do today. Because living is fluid, changeable, and varied. And if that change is permanent, if the expectation was unreasonable or no longer viable, it doesn’t mean you have failed. You just need to change your perception and definition of your “goal,” or maybe even decide you don’t want one.

~ Some days, you will push yourself farther than you can imagine, and other days, you just have to show up. Both are accomplishments.

~ You are not alone. You are surrounded by others who face their own challenges and there is power in that. However, just because you are together, doesn’t mean your challenges, decisions, or choices are the same. Nor should they be.

~ Sometimes, you may feel that no matter how hard you work, you’re not moving forward or improving; that you’re stuck in a stationary place. Just keep at it. You are changing and becoming stronger through your efforts, even if it feels like you aren’t going anywhere.

~ If you can just get on the “bike,” you may be surprised at how far you can push yourself; the work you are capable of doing; and how good you can feel. Trying is an accomplishment all on its’ own. Acknowledge your effort, not just the end goal.

~ Some days are just shit. They’re boring and hard and annoying. Try to be compassionate towards yourself.

~ Sometimes you need a few days to step “off” and relax. Giving yourself breaks are an integral and necessary part of the process – they are not failures.

~ Some days it’s going to feel easy, like you’re on a flat, straight path; and some days that hill is going to feel so hard, it’s going to take all you’ve got to not give up. Just do what you can.

~ You don’t know what is going to happen or what you might achieve until you start. Some of your best days may be on a day where you feel tired or off. If you can just get on the bike, you may surprise yourself. You won’t know until you try.

~ There is more than one definition of success. You can define it. You can change it. And you can work to reach it, day by day.

~ This shit is hard. It takes tenacity, time, good and bad days/weeks, acceptance of change, and self-care. It’s sweaty and exhausting. It’s not always fun or fulfilling. You can only do what you can or want to do in that moment, and that is good enough. Just keep spinning/living.

The ironic component to this post, is that lately I have gotten so sick of spinning. I feel like my motivation has just died out. I’m going to try and go to more classes and see if I can recharge and rev up some enthusiasm. I have to accept that it’s okay if I can’t do it alone. Sometimes you need to be buoyed with support from others to make it through. See, look at that! There’s even a lesson in my anti-spin feelings.

Now, if I can just believe all the things I just wrote. ;)

Looking in the Mirror: Seeing Yourself Through Others’ Eyes

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How do you like me meow?

I met with someone today who barely knows me. And while we were talking, she offhandedly said something like: “Don’t worry. Being you, you’re not going to have a problem finding a job and a place, or making friends for that matter. With your personality and energy  you’re going to do well anyway. I’m not worried.” Haha…what?!

I spend a lot of time worried about what people think of me, generally to an irrational degree. I fear they may see me and think: “Someone that ugly does not have a right to show her face without a hat or at least some makeup,” or, “You can just tell that girl is a loser. Plus, how dare she wear spandex. There’s nothing a gym can do about that ass.” And in my mind I’m convinced, just by speaking with me, the barista or Safeway checker will think I’m irritating, boring, arrogant, obnoxious, loud, overbearing, conceited, pathetic, opinionated, naive, pessimistic, and/or crazy. I guess the last one would be right given the paragraph above. LOL.

And yes, I know: others are too self-absorbed to pay attention or judge you. I’m going to go ahead and call bullshit on that one. After all, I spend a lot of time watching people, their interactions, noting their demeanor. I don’t suppose it leads to judgement, it’s more like seeing how the “other side,” i.e. those that are not me, live. I will agree that yes, the fact that I think everyone is looking at me, even if what they are thinking is bad, is in and of itself self-absorbed. Huh.

I am, by nature, a pretty unoffensive person – sometimes to a fault. I try to be kind, patient, and thoughtful to people around me. I show deference to most people, deserved or not. I’m also that person who helps you when you’ve dropped something or ask if you need help if you look confused. I generally can’t help you if you need directions, but I can at least commiserate with forgetting where you parked your car and help you find it. The point of this all being, I don’t think objectively, that my behavior is off-putting. And yet somehow I am convinced that even while I’m helping someone or giving them a smile, they are just disgusted with me. And I think that’s really my inner self telling me I’m disgusting and then I misappropriate it to someone else. It seems the two sides of my brain – the pure and the evil – argue over the most benign things. And yet those are the things that make it so difficult to have the confidence to make a call or leave the house.

And then every so often someone I know, within the context of the conversation, describes me. Now, I take everything with buckets filled with salt, so I recognize that people don’t generally sit you down to tell you what a  loser you are. (Well, they have, but that was during my teen years.) I also know that these are people that love me even at my worst moments, or that they’re people who I pay to help me. I also think that sometimes a person wants something from me, so they say whatever it will take to get it. For example, at a bar when someone wants me to go home with them. It’s curious how amazing I am at that point. ;)

But sometimes, it’s someone I just met at a party, an interview, or a person that I’ve been taking a class with who I finally have coffee with. And the shit that comes out of their mouth. They don’t have to say it; it’s not part of basic decorum. And they usually have known me for a few hours at most and yet they tell me all these wonderful things about myself. (I know this sounds like bragging so please note this is a very, very rare occurrence.)

I don’t know if I have a face that says “I’m insecure, I need reassurance.” Or maybe my self-deprecating humor clues them in. But I pride myself on my bullshitting ability to hide my insecurities (most people assume I am confident,) and I don’t think people are listening hard enough to know that the joke is actually a real dig at myself. Maybe people don’t need much to like you. Or maybe they’re lying. I mean, we all do it: reassure a friend when we actually aren’t sure what we’re saying is true; compliment someone just to calm them down or to get ahead. That’s the politics of human nature and relationships. Maybe it’s from living in Washington, D.C. for a decade, but it’s just the way the world works.

I know that I’m damaged  from my childhood and my internal dialogue of hate, and when I look in the mirror I see someone who is a pathetic fraud. I even know that a lot of people most likely look in the mirror and judge themselves harder than anyone else would. And when my friends are doubting themselves, when they can’t see how amazing they are, it shocks me. How can they not know their worth? Why would they ever doubt that they were special and deserved so much in life,  even if they don’t always get it? But it’s easier to say it to someone else, than to believe it yourself.

I’ve been practicing looking at myself in the mirror. I know, this sounds really odd. But when I’m depressed, I can go weeks dodging myself in mirrors or reflections. There is something so painful in not only seeing the misery in my face, but in the hate I feel looking at this person who has ruined my life. So, I’m trying to practice looking at myself. I’m trying to become comfortable and accepting of the woman I see looking back at me. So far, it’s been really uncomfortable. I don’t imagine I’ll ever look in the mirror and think, “Who is the fairest of them all? Why that would be me!” But, maybe I can look in the mirror and acknowledge that there is something there of worth.

I wonder if one day I will look in the mirror and see something different than I see now? I wonder if one day I will look in the mirror and not be ashamed or disgusted?

I wonder if one day I will look in the mirror and see what others see in me.

Facing Facebook: Lamenting the Losses of My Past Life

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I have a complicated relationship with Facebook. When I was in DC, it was a great way to reconnect with old friends and to highlight the civil rights work my organization was doing. I used it to complain about society, my life, and post fun, witty comments. I interchanged with a lot of people and it was a convenient social outlet.

After my first breakdown, I came home and lived alone for a year in Berkeley. Facebook became a feeding ground for my depression. As we all know, people don’t really post about shitty things in their lives. They paint this magical vision of perfection – with their child, on a cool vacation, laughing with their friends. I also didn’t know what to post. I knew people would want to know where I was, what I was doing. I felt like if I just vanished completely, then no one would ask and I wouldn’t have to say how I was unemployed, living with my parents, doing nothing, thinking about nothing, and just breathing, eating, sleeping, and crying. As much as I wanted to see people grow, at a certain point it started to feel masochistic.

Since then, I have gone on and off Facebook. I have deactivated and then reactivated. I have agreed to only go on once a week to see if there were any birthdays. I have taken people off my news feed who upset me. I have stopped posting.

However, a lot of the jobs I am currently looking at, want to see you have social media experience. They also do research on prospective applicants online. So even though I am currently in a phase of deactivation, I went on today to review my previous posts and make sure there wasn’t anything too inappropriate.

Looking back on my posts from 2009-2012, before the breakdown, I feel this melancholy for all I have lost. Not just in time, but in friendships. I started thinking about all of the people who enjoyed me, even as acquaintances – from college, previous jobs, interns, people I had met through others, roommates, even childhood friends. Even though we might have only connected when they liked an article I posted, or when they were in town, and even though I can tell I was bullshitting my “I’m a happy go lucky gal,” it was still a human connection process.

So yeah, I’m sad. Not just because I lost touch with so many people, or because I can’t remember who they are. It’s because I wonder what my life could have been if I had been the person I am now. I wonder how different work would have been. I wonder if I would have actually gone to the events I wrote about, or actually met up with the people in town. I wonder if I would have utilized Facebook to keep myself connected and bolstered with friendships. (Looks like someone has the case of the “what-ifs.”)

I told my therapist that the idea of looking for a job right now is scarier than when I was fucked up. Because I knew how to live life and do the things you do when I was fucked up, because that was just who I was. And even though you would think I was weaker then, now, not being clinically depressed, and having gained strength in my understanding of myself and the damage I have incurred, I feel so vulnerable and that makes me feel weak.

I mean, I don’t know how to live life as this person I am now?! Technically, I have more skills for how to deal with stress, anxiety, and bad days, but they’ve never been tested “out in the field.” (I don’t count being able to go to the grocery store alone even when I feel like crap as “out in the field.” That’s more like basic training.) And feeling vulnerable before jumping into a new world, especially where old habits will most likely feel tempting, I guess I’m just scared for and of myself.

I wonder if this new me will be a person who goes on Facebook? Who reintegrates back into her old world but as a different person? Am I still that person? Can I be that person without the crippling depression, anxiety, and hypomania? As I question whether I am strong enough to have a job, I also wonder if I am strong enough to be actively involved on Facebook. I laugh and resent that Facebook has the power to invoke enough thought for a blog post. But I do believe it is another thing from my past that represents a larger component of life and has brought me pause.

Like most things in life, Facebook can be an asset and a danger. It can connect you to the world, and it can also make you wonder if you are meant for this world. I no longer look at people’s pictures and feel shitty about myself. I am happy for my friends and I know that their lives are a lot more than a post or two.

And maybe, one day soon, I will be ready to be present…on social media. But for now, I need to put my energy into forming and strengthening the beginning of a person I might one day become. I have to be ready to be present…in the present.

I know, within myself, that I have a lot to be proud of, but none of it can be displayed or captured on Facebook. And that’s okay. Because it’s bigger than a picture, a video, or a two sentence quip. I am in a state of growth, a complicated, undefinable, unknown space of evaluation, process, experimentation, and decision-making. It’s hard and shitty, but amazing and special – and I don’t need to share that with anyone for now. Well, I guess, except with you. :)

The Dilemma of Accountability and Mental Illness

There are a lot of shitty components to being mentally ill. But one of the hardest, at least for me, is identifying accountability.

Growing up, I was told I was too sensitive and empathetic. I didn’t know why, but I was lazy, a whiner, indecisive, a drama queen. I got sick a lot.

I hated myself. I mean every part of me – inside and out. What I looked like, things I said , things I wanted, both physical and emotional. I could not stand my personal evolution and I knew no matter what I did, I never would. So when things didn’t go my way, I understood my culpability.

And I blamed myself for all of it. Somehow the fact that there was nothing good in me, nothing worthy of life, was a weakness, a failure…and my choice.

Once I got diagnosed with my repertoire of mental disorders, I was told that so much of my life was not in my control. That my choices weren’t really mine because I wasn’t really myself. The way I felt was not my fault, but rather a consequence of my disease. Okay, that’s an oddly chilling concept, but I get it.

But I still made choices that affected others. Maybe my brain was not able to think “correctly,” but I still hurt people and my life by the decisions I made. When they say “it’s not your fault” is that entirely correct? I was thinking under a depressive hypomanic state, but I was still functioning. I have lost so many friends because I never returned phone calls, text messages, and emails. My reasons weren’t rational or healthy, but I still made those choices, and in doing so, I hurt them. (Sometimes to a point where I have found them unwilling to forgive.)

So where does the buck stop? Because unlike a cold, this isn’t going away. All I can do is temper and manage my brain chemistry, try and develop and practice techniques to help guide me, and hope I have the moxie to push through the torrential shit of life.

It may not be my fault that I thought that way, but I still feel I am accountable for my actions. I didn’t care at the time because I figured I’d be dead soon, but I am still responsible for the pain I may have caused others and the outcomes that now lay before me.

So where is this line between the disease and the person? Does it even exist? At what point is it me and not my illness? Or when is it not me, but my illness? How do I know with every decision and choice I make, if it’s truly “me” making it? Is it possible to not be responsible but still accountable? Who is to blame and who must handle the fallout?

Consider me befuddled.

Decisions: Jumping Into An Ocean of Unknown Outcomes and Consequences

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I’m getting tired of all these life decisions. I don’t know what’s more irritating: knowing I have to make them and not knowing what to do; or watching myself avoid them like the plague. Both make me feel like shit. I’m ashamed because for so long I was embarrassed that I didn’t have a life and now I technically have the power to create one, and I’m too lost and scared to make one. I also feel like everyone is waiting to see what happens. After all, I have never actually been this way before – so if I do go out in the world, will I be strong enough? Will it have been too soon to leave the cocoon? Will I survive or come home nine months later like I did after the ECT treatment three years ago?

I know everyone has to make life decisions. I guess I’ve always been a fan of letting them be made for me – either by others or by fate. Sometimes if you just wait long enough, you are automatically put into a situation based on timing and don’t really have to decide anything. I guess that was how I felt with London. If I just kept doing the bare minimum but not overthinking it, September would come and I would be on the plane and that would be settled.

I am suspicious of this new possibility of not going to London, but seeking a different path, because I thought of it when I was depressed. So I suppose there’s a part of me that questions if it was made of sound mind or if this is some elaborate attempt to sabotage myself. I have written out pro and con lists and thought through the goals and outcomes for each situation. Obviously, both have their share of good and bad possibilities. Some say the good news is that neither would be a mistake since they are both incredible opportunities, but clearly they have never dealt with depression and anxiety.

I haven’t worked since 2012. Since then, my memory has decreased, my cognitive skills have slowed, and I live a simple (sometimes empty,) life. While I have grown stronger without clinical depression, I almost feel more fragile – not knowing if the strength I have built to help me go to the gym and make appointments will be enough in the real world of jobs, people, men, and life.

I suppose since I made the decision to accept defeat and come home, I have doubted my ability to handle myself. Perhaps that is why I stayed in California for my job after ECT – so that if I fell, I would be close to home. And I did, so I suppose that was convenient. But perhaps having that “safety net” actually made it worse because it allowed me to stay closer to the possibility and comfort of depression, knowing home was just two hours away.

It’s odd given that when I was younger and incredibly depressed, I handled all of this. Not well mind you, but I knew it was something I had to do, so I did it. Part of what I think kept me going when I was in NY and DC when I was younger, before the breakdown, was that I was on my own (without my family,) and independent. I was scared of everything in life, but I didn’t have anyone to hold my hand, so I either did it or didn’t. I was forced to make decisions, good and bad, throughout my illness. And while some of those decisions were ineffective and harmful, they were still decisions. And I suppose I know how to make decisions from a depressed state of mind. I’ve been doing it since I was a child. I developed a system for life within my depression to make myself function – at least at work and in public. But I am not that person anymore and while I am grateful for that, I am really scared. I don’t know how strong this person is. I know, like all new things, you really don’t know until you try. But I also guess there is a part of me that knows deep down that if I fall, I don’t know if I will be able to get up or want to.

When I became depressed a few weeks ago, it became clear to me that I couldn’t go back to feeling that way. I couldn’t go back to a life where I was unable to leave the house, answer the phone, shower, or clean, with a constant desire to hurt and ruin myself in whatever way possible. I told myself when I was 33 that I wouldn’t live a life like that past 35. And now I am turning 35 in August and I feel like I’m teetering.

I’m pretty sure the medication regimen I’m on is working, at least for now. I know the majority of the issues that I believe are causing me anxiety and depression, are big, and anyone, depressed or not, would be having a difficult time facing them.I am aware that there is no reality where I will not carry my bipolar II with me. There will be no decision I can make with complete confidence that I will make it. And I know that no one faces life’s challenges with a blank slate. We all go into our life with our past, our weaknesses, our strengths, our doubts. Everyone spends every day of their life jumping into an ocean of unknown outcomes and consequences.

I guess I’m just really scared that if I jump, I’m going to drown.

One Extra Pill: My Brain is Such a Drama Queen

Besides the constant tremors and occasional rapid heartbeat and dizziness, the new drug regimen I started last Tuesday seems to be working. I feel different. More steady. Anxious more than sad, which while anxiety sucks, still feels safer than sadness.

I am astounded at how incredible the mind is. Changing a medication by .25 sends it into a rapid depressive episode that last for weeks. Upping a drug by 100mg makes the person feel ready to face the day, even on the days she doesn’t want to.

Don’t misunderstand me. It doesn’t fix you. I still have dark “abnormal” thoughts about myself and my life. I worry I will, like before, suddenly spiral into destructive behavior. I’m not normal, whatever that might be. And I never will be.

But for now, at least for today, I’m pretty sure I won’t. And that is amazingly different than just a week ago.

The Disadvantages of Being a Blank Canvas

I used to write poetry, as I suppose many emotionally-wrought young adults do. I remember how intense the words felt, how little I had to try – the release of my pain, my frustrations, my truth just spewed out of me.

I decided to read my poetry today. I think most of it was from college. I remember how soothing it felt to put my emotions on the page. But my goodness, it is truly awful shit. My metaphors are painfully melodramatic. I wrote about things I only understood from movies. I was tangential – though that hasn’t changed.

Since I’ve been on medication, at least when it works, my creativity seems to evaporate. When creative opportunities arise, my mind is blank.

Those with bipolar I often say that medications drain them of their creativity. And many of them refuse to take medication because they fear losing that integral component of themselves. The mania, for many, has helped define their selves, their passions, their art. I have bipolar II so it’s not the same thing in terms of hypomania. However, I do believe my medications dull my mind.

I kinda miss it: the intensity of it all. I think it was indicative of my resolve to find a way to still get what I wanted. I was yelling then – in my behavior and actions: “Someone listen. I am in pain and it is killing me. I want things like love and laughter and all I feel is rot. And I fucking deserve those things. My gentle, loving soul is slowly vanishing and I don’t know how to stop it. This is bullshit and it’s not fair!” I was angry at this disease and how it punished and controlled me. I just wanted it to go away. I’m still angry I suppose. Frustrated by the damage, the uncertainty, the lack of control.

But there is a sad acceptance nowadays. Maybe after medications, ECT, countless attempts at different therapies, efforts in life changes (in diet, exercise, sleep,) I’ve come to a melancholy understanding of the possibilities in my life and the restraints that come with the mental illness that will always be a part of me. Funnily enough, I think I know less about myself now than I did then. Back then, even with all the self-hate and self-harm, I still felt like I knew who I was underneath the depression. But maybe, living so long with the depression, it had come to define me, mold me, make me. But now the depression has lifted and I am, much like my brains’ creative canvas: blank.